Patient Support & Education

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The Chris Elliott Fund\'s Corporate offices and patient support services are closed from 10/4/11 - 10/15/11. Please contact us at Info@ChrisElliottFund.org with your requests for help but please be aware that we will be delayed in responding.

What to do if you have been diagnosed with Glioblastoma

When your health insurance is not accepted for brain cancer, please reach out to these two organizations. They can HELP!

Patient Advocate Foundation
help@patientadvocate.org
421 Butler Farm Road
Hampton, VA 23666
Phone: (800) 532-5274
Fax: (757) 873-8999
http://www.patientadvocate.org/help.php?p=186

Disability Rights Legal Center
DRLC@lls.edu
Loyola Law School Public Interest Law Center
800 South Figueroa Street, Suite 1120
Los Angeles, CA 90017
(213) 736-1334
http://www.disabilityrightslegalcenter.org/about/cancerlegalresource.cfm

Joanna Morales, Director, Cancer Legal Resource Center, (213) 736-8364, or Joanna.Morales@LLS.edu

  1. Contact Us
  2. Find a brain tumor center that offers advanced treatment options versus one standard treatment for all—standard meaning: six weeks of standard radiation plus Temador (chemo drug).
  3. Prior to surgery, complete paperwork to arrange for live tissue to be saved separate from pathology requirements
  4. Request genetic testing and DNA sequencing on your live brain tumor sample to develop an individualized treatment plan for you.
  5. Work with a neuro-oncologist to schedule MRI’s more routinely than standard protocol

 

Disclaimer: The Chris Elliott Fund advocates for individualized treatment for brain tumor patients including genomic testing and DNA sequencing. The information provided on this site should not be used for diagnosing or treating a brain tumor, health problem or disease. It is not a substitute for licensed medical care. Information herein is educational and designed to support, not replace, the relationship that exists between a patient and/or site visitor and his/her physician.

The Chris Elliott Fund for Glioblastoma Brain Tumor Research Fund (CEF) is a 501(c)3 non-profit charity, Tax I.D. #26-2185614
The Chris Elliott Fund does not accept contributions from residents in North Dakota
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